A WOMAN who spent thousands on Mounjaro after being told to lose weight for PMOS symptoms said it was all for “nothing” after learning she may actually have a different condition.
Caitlin Sorby, 31, was diagnosed with polyendocrine metabolic ovarian syndrome (PMOS) – previously known as polycystic ovary syndrome (PCOS) – in July 2024.
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Among other things, the hormone condition can cause weight gain or make it difficult to lose weight.
So at just 5ft 2ins tall and over 16st (105.7kg), Caitlin began taking Mounjaro following a GP referral to a weight management programme – she was reassured this could reduce her symptoms.
Fast forward to now, she has lost almost 8st and weighs 8st 12lbs but despite this, her presumed PMOS symptoms – including severe pelvic pain and irregular periods – have continued.
Caitlin’s symptoms were recently reviewed by her doctor and rather than PMOS, she was told she might actually have endometriosis.
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The NHS clinical officer, from Glasgow, said: “I just can’t believe after all this effort, nothing has changed – it makes you feel like it was all for nothing.”
“It’s heartbreaking really,” she said, adding that “it’ll be great not to fork out £300 a month”.
PMOS is a hormone condition that can affect hair growth, periods, fertility and mood.
Symptoms can include irregular periods or long gaps between periods, difficulty losing weight, mental health problems and feeling very tired.
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Caitlin’s doctor initially diagnosed her with the condition in July 2024, following her periods failing to return after stopping the hormonal injection in September 2023.
Tests also revealed that she had “high” testosterone levels.
Along with this, she reached a size 22 – weighing her heaviest at over 16st – after a break-up left her “turning to food for comfort” in the summer of 2023.
At the time, she said she typically skipped breakfast, had a sandwich and crisps for lunch, followed by spaghetti bolognese for dinner, as well as packets of crisps and large chocolate bars as snacks.
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Speaking about her journey, Caitlin said: “I didn’t really realise I was as big as I was for a while.
“But I didn’t want to go anywhere or do anything and felt quite low.”
When she received her PMOS diagnosis, Caitlin believed this “made sense” as she found it difficult to lose weight.
She said: “I tried everything including weight loss shakes when I was in college, and nothing seemed to help me lose weight.
“I joined weight loss groups and followed it properly but the scale wouldn’t shift.”
Caitlin was referred to the NHS’ weight management programme by her GP after the PMOS diagnosis and through this, she began attending Weight Watchers in November 2024.
However, she found herself gaining 1lb (0.5kg) one week only to lose it the next, leaving her feeling as though her PMOS was “getting in the way”.
So in March 2025, she was prescribed Mounjaro privately through her local pharmacy.
“As soon as I started taking it I lost a pound a week consistently, and I was happy with that, and my friends and family started noticing it gradually too,” Caitlin said.
While she initially felt nauseous on the injections, Caitlin said this soon passed and after a few months, she started going to the gym regularly and cycling with her dad to help her weight loss.
The 31-year-old also continued attending in-person Weight Watchers sessions, following a plan specifically designed for people taking Mounjaro.
By the end of 2025, Caitlin had reached 9st (57.2kg) and was wearing a size eight.
And now, she weighs 8st 12lbs (56.2kg), saying she has “more energy” than ever before.
But sadly, her symptoms have not improved. While her periods gradually came back, she still suffers from extreme pelvic pain and heavy, irregular periods.
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Her symptoms were reviewed by her doctor and they revealed that instead of PMOS, she might actually have endometriosis.
Caitlin said: “I’ve been taking naproxen and nothing is helping my pains, I really thought things were going to get better.
“I’ve always had irregular and heavy periods too. Losing weight hasn’t helped me much at all, on that side of things.”
Endometriosis is where cells similar to those in the lining of the womb grow in other parts of the body.
Symptoms can include severe period pains and heavy periods, pain in your lower tummy and back, extreme fatigue and pain during or after sex.
It currently takes an average of eight years and 10 months to get a diagnosis in the UK, according to The Endometriosis Foundation.
Speaking about the discovery that she might have endometriosis, Caitlin said: “There’s just not enough care and research into women’s health.
“It’s heartbreaking really, but I’m still glad I lost the weight and I’m looking forward to eventually coming off the jabs.
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“It’ll be great not to fork out £300 a month, I had to ask my mum for help to cover it, and people say it’s cheating but it worked for me, I don’t think we should judge people who use it.”
Caitlin is now hoping to maintain her weight and stay on Mounjaro for a few more months before eventually coming off it under her pharmacist’s supervision.